My Lyme Disease Journey

In 2008, my life changed with something so small it was almost invisible, a tick bite, while on holiday in Scotland. At the time, I had no idea that bite would mark the beginning of a long battle with my health, my identity, and my hope.

The symptoms crept in slowly, then suddenly all at once. At first, it was fatigue I couldn’t explain. Then came dizziness, migraines, strange neurological symptoms, allergies, and a brain fog so thick I sometimes struggled to form sentences. My once-sharp mind felt like it was slipping away. I was bedridden for two years, unable to do anything for myself. My poor husband had to help me bathe and wash my hair. Even the simplest of tasks were impossible.

So, I did what anyone would do, I sought help. I trusted the doctors, the specialists, the NHS, but instead of answers, I was dismissed, gaslit, and told it was “anxiety,” “stress,” or simply “in my head.” Bloodwork was misread, tests were incomplete, and no one seemed willing to look deeper. I was constantly gaslighted by the so called 'experts'. Each appointment left me feeling smaller, more invisible. I've seen nearly 30 different doctors, had hundreds of tests, spent THOUSANDS on treatments, tried/taken some fairly weird things and been diagnosed with many many things & I've tried absolutely everything imaginable!

The truth was, I was living with neurological Lyme disease and 12 (viral and bacterial) co-infections. Left untreated for nearly 10 years, the infections spread through my body, disrupting my nervous system, immune function, endocrine system and even my sense of balance. For years, I've lived with vertigo so severe I could hardly walk straight or even stand. My world tilted and spun, while the medical system turned its back, but in the silence, I learned to listen to my body. I began journaling every symptom, tracking patterns, and researching PubMed late into the night. I discovered others like me, people misdiagnosed, dismissed, and left to suffer in the shadows. Slowly, I began piecing together the truth of what was happening inside me.

Healing did not come overnight.

My healing came in layers; physically, emotionally, spiritually. I learned the importance of detoxing my liver and lymph system, supporting my mitochondria (MTHFR mutations are no joke), calming my vagus nerve, and nurturing my immune system. I've used tools like PEMF therapy, sauna, rebounding, breathwork, herbal medicines, acupuncture, EOs, hyperbarics, neuroplasticity, HRT, etc. etc. Nutrition became medicine; rest became sacred, but the deepest healing came when I realized that illness is NEVER just physical. My body was carrying decades of unprocessed trauma, abuse, loss, grief. Lyme disease didn’t just break my body, it unearthed the buried pain in my soul. I came to see that healing meant more than killing infections, it meant unburdening my body of EVERYTHING it had carried for too long. Dr. Lee Cowden told me early in my journey that this would be a major factor in my healing, and I dismissed it. Fast forward to present day: I wish I had listened, I could have saved years. We live and learn......

My faith became the anchor I clung to. When doctors dismissed me, I held onto the God who never did. Scriptures about healing, renewal, and restoration became my medicine. On my weakest days, when I could barely get out of bed, I whispered promises from the Psalms and believed that my story wasn’t finished yet.

Today, I am still healing. Some days are harder than others, but I am no longer the powerless patient I once was. I am an advocate, a researcher, and a voice for those still searching for answers. My journey with Lyme disease has been one of pain, but also of profound transformation.

Lyme tried to take everything from me, my health, my hope, my life, but instead, it became the doorway into something greater: a deeper understanding of the body (mind, body, soul connection - see: 1 Thessalonians 5:23) , the resilience of the spirit, and the God who heals.

If you take only one thing from this post, let it be this: we aren't just a physical body, we are triune beings. Unfortunately, western medicine are light years behind when it comes to fully understanding this, despite most ancient cultures/religions acceptance.

Paul says in 1 Thessalonians 5:23: “May your whole spirit, soul and body be kept blameless at the coming of our Lord Jesus Christ.” 

Just as God is Father, Son, and Holy Spirit, three in one, we too are created with three parts that make up the whole of who we are.

• Spirit is the part of us that connects directly with God. It’s where faith, worship, and our new life in Christ dwell.

• Soul is our mind, will, and emotions—the seat of our thoughts, choices, and feelings.

• Body is our physical dwelling place—the temple of the Holy Spirit (1 Corinthians 6:19).

When all three are healthy and in balance, life flows with more peace and clarity, but if one is neglected, the others feel the strain. For example, if the body is sick, the soul can grow weary and the spirit discouraged. If the soul is burdened by trauma or toxic thoughts, the body might carry stress and the spirit may feel distant.

That’s why wholeness matters. God cares about every part of us, not just our spirit, but also our mental health and our physical wellbeing. Healing is most powerful when spirit, soul, and body align under His care. Jesus came not only to save our souls, but to bring abundant life (John 10:10) in every part of who we are.

This has been the MOST important understanding in my journey so far.